Susannah Fox
Susannah Fox, Author of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care
Photo credit: Elizabeth Dranitzke
Tapping into the patient led revolution
When mainstream health care fails, people turn to each other to find or invent solutions. Learn how partnering with people with lived experience results in improved health outcomes, discovery of effective treatments, and new products and services. On a professional level, it is a competitive advantage for organizations to tap into the peer-to-peer revolution. On a personal level, there are people who would love to help you, if only they knew how to find you. It is our opportunity to learn from the rebels of health care and step into our power as Seekers, Networkers, Solvers, and Champions.
About Susannah
Susannah Fox is a health and technology strategist whose life’s work has been to explore and map the terrain created by patients, survivors, and caregivers. She passionately believes that open access to information, data, and tools can help patients make better decisions and catalyze health care innovation. Her book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care (MIT Press, 2024), showcases how consumers are building up our collective capacity for better health and how the health care ecosystem can leverage the power of connection with those they serve.
Fox is a former Chief Technology Officer for the U.S. Department of Health and Human Services during the Obama Administration, where she led an open data and innovation lab and launched Invent Health, an initiative focused on user-driven innovation for medical and assistive devices. As an entrepreneur-in-residence at the Robert Wood Johnson Foundation she built project teams to bring patient and caregiver insights into work of the nation’s largest philanthropy dedicated solely to health. For 14 years she directed the health portfolio at the Pew Research Center’s Internet Project where she researched the intersection of health, social media, and patient engagement and first coined the phrase peer-to-peer health care.
Fox serves on the board of Cambia Health Solutions. As an Internet Geologist, she also advises organizations — big and small, nonprofit and for-profit — on how to navigate the intersection of health and technology, targeting areas of the health care system that need to work better for patients, survivors, and caregivers.